Showing posts with label children with special needs. Show all posts
Showing posts with label children with special needs. Show all posts

Monday, August 17, 2015

Identifying and Reinforcing Islands of Competence in Children with Special Needs

By Robert Brook, Ph.D.,  8/10/2015 - Social Thinking Articles from Social Thinking

(Note: Dr. Brooks was a keynote speaker at the 8th Annual Global Social Thinking Providers’ Conference, held June 2015 in South San Francisco. Attendees were very enthusiastic about his presentation, “Nurturing Motivation and Resilience in Children with Special Needs: A Strength-Based Approach” and infusing his positive ideas into their classrooms, clinics, and treatment programs. -Think Social Publishing)
Identifying and reinforcing strengths in our students or clients is a well-accepted practice today among mental health and other professionals, especially since the emergence of the field of “positive psychology” in the late 1990s. But it was not in vogue years ago. As a psychologist trained in the late 1960s and 1970s, I was taught to focus on “fixing deficits” in my patients rather than building on their strengths. For example, when I conducted an evaluation of a child I asked few, if any, questions of parents or teachers to elicit what they perceived to be the strengths of their child or student. I rarely asked children what they saw as their own strengths. I was more inclined to delve into a discussion about their problems rather than invite them to elaborate upon their interests and competencies.
This focus on deficits was prompted, in part, by the reason that most parents consult with a mental health professional such as myself. They do so because they have concerns or worries about their children’s behavior, learning, social skills, and development. While it is crucial to address these problems, I discovered that to place too much emphasis on analyzing and fixing deficits limits our ability to assist children with special needs to lead more satisfying, resilient lives. It is for this reason that more than 30 years ago I introduced the metaphor islands of competence to capture the strength-based approach I had adopted.      
In a book I co-authored with my colleague Dr. Sam Goldstein, Raising Resilient Children with Autism Spectrum Disorders (2011)we emphasize the shortcomings of a deficit model, which is even more apparent when working with or raising children with ASD. If clinicians and other caregivers spend most of their time in a reactive mode, constantly and frenetically attempting to fix the multifaceted problems these youngsters face, it leaves little time or energy to reflect upon and adopt a proactive approach that asks, “What are the strengths and interests that this child possesses, strengths than can be nurtured to bring this child a realistic sense of accomplishment and dignity?”
When I apply the metaphor of islands of competence in my clinical work and consultations, I raise a series of questions for parents (as well as teachers and other professionals) and children that include the following:
  • What are two or three strengths or islands of competence your child/student possesses?
(I should emphasize that I always inquire of children and adolescents what they see as their islands of competence and if they respond they do not know, I suggest we spend some time considering that question. I have found that youngsters are very interested in doing so.)
  • What would your child/student list as his/her islands of competence?
  • How do you use and display your child’s/student’s islands of competence?

To follow is an example of using a strength-based approach with a teenage girl on the autism spectrum. Lisa told me she loved to teach young kids how to do things, such as sing songs or draw pictures. She said, “I think young kids like me.” When her parents were asked about their daughter’s strengths, they described her as the “pied piper” of the neighborhood, emphasizing how other parents loved her to be a helper with their children.
I presented this information about Lisa’s islands of competence in a meeting with her teachers. There was a palpable excitement as they brainstormed how to apply this strength in the school setting. One teacher observed, “It’s fun to think of Lisa’s strengths and not focus on what she can’t do.”
By chance, there was a nursery school right near the high school. Lisa’s teachers demonstrated an impressive ability to think outside of the box. They created a “class” for her called “child development.”  It involved Lisa going to the nursery school four periods a week, interacting with the young children (under supervision), and then writing in a journal about her experiences. One of the teachers also served as an advisor to the high school newspaper and helped Lisa organize and write an article for the paper about her experiences in the nursery school. Thus, this activity reinforced cognitive, social, and emotional skills.
After the article was published, Lisa excitedly reported that a few other students at the high school (students who typically did not make an effort to speak with her) came over to say they enjoyed what she had written. Lisa’s mother told me, “These were very precious experiences for Lisa. Her self-esteem certainly has been given a boost.”
I believe that our capacity to truly touch the hearts and minds of children and adolescents will be compromised if we pay only lip service to their beauty, interests, and strengths. We must constantly search for their islands of competence.

BIO
Robert Brooks, Ph.D., is a clinical psychologist on the faculty at Harvard Medical School. He is an award-winning international speaker, author, and educator on the themes of resilience, motivation, family relationships, and staying positive. He has a special interest in applying a strength-based approach with people of all ages who have been diagnosed with ASD, ADHD, and other neurological issues. Visit www.drrobertbrooks.com to find many additional articles, along with links to his products and presentation schedule.

Article HERE.

Sunday, December 29, 2013

All in Need, Family Support - 2013 donations

From All in Need, Family Support (AiN)

Dear Friends and Families,

When you or a family member wants to enjoy an evening out or just would like to run to the grocery store without your child, where do you turn?
If you’re like most in our community, you contact your babysitter or family.

Why?

Because you know they can meet the needs of your child/children.

And you also know that because of your relationship with the sitter they are dedicated, compassionate in your caring for your child.

What if you didn’t have that resource?

Many families who have children with special needs cannot find dedicated sitters who can focus on their child’s needs. Unlike you, they aren’t able to enjoy and evening out or run to the grocery store without bringing their child along with them.

Your contributions have helped make All in Need, Family Support the recognized respite care provider in the Bay area. We are so grateful to you for supporting our committed team of care givers.

Thanks to you, our caregivers have touched the lives of many amazing children who have special needs and their families– whether they are facing Autism, Mitochondrial Disease, Speech and Language, Learning Disabilities, or mood disorders.

More information or to make a donation HERE.

Wednesday, December 25, 2013

Do children outgrow learning disabilities?

By Barbara Mader from examiner.com

Most learning disabilities manifest when a child nears school age. Some may show earlier, like some speech/language delays, which may later be diagnosed as an auditory processing or other language related learning disability. Other learning disabilities may not manifest as obviously until practical application is needed, such as math computation or reading comprehension.

Parents worry about overall life implication and if their child will outgrow a learning disability. The short answer is- no. Learning disabilities cannot be outgrown since they are neurologically based. Just like growing one’s hair longer won’t change the overall curliness or straightness of it, getting older won’t change the neurological make-up of the brain. What can happen with early diagnosis of a learning disability is educational and/or therapeutic intervention, which can retrain the brain to compensate for, cope with, or learn new strategies to reach the desired end product a non-learning disabled brain can reach through conventional teaching.

Read more HERE.

After the Diagnosis: Improving Maternal Mental Health

By Lee Wilkinson from Examiner.com

Parents worldwide often experience a range of emotions when their child is first diagnosed with autism, including shock, sadness and grief, anger, and loneliness. Mothers, in particular, appear to face unique challenges that potentially have an impact on their mental health and wellbeing. This includes high levels of psychological distress, depressive symptoms, and social isolation. Almost 40% of mothers report levels of clinically significant parenting stress and between 33% and 59% report significant depressive symptoms following a diagnosis of autism spectrum disorder (ASD). The prevalence of psychological distress among mothers of children with ASD suggests a need for interventions that address parental mental health during the critical period after the child’s autism diagnosis and when parents are learning to navigate the complex system of autism services.

Read more HERE.

Wednesday, September 18, 2013

Guest Assistance Card Program to End at Disneyland and Disney California Adventure

If your family is anything like mine and you’ve visited the Disney Parks here in Anaheim, you’ve more than likely used the Guest Assistance Card program available at both Disneyland and Disney California Adventure Park. This program has been a major lifesaver whenever we’ve taken our special needs son Andrew to DL or DCA. Without it, we wouldn’t have lasted more than an hour before having to turn around and head back home in total defeat.

The card has been a game changer for our family and now, much to my chagrin, I’m sorry to report that it’s on it’s way out. I first learned of this disappointing news today, via Aunesty Janssen over at Temporary Tourist.

Read more at Special Needs Orange County blog HERE.

Thursday, September 12, 2013

Fears of a Mother of a Special Need’s Child

By Autumn Green from All In Need, Family Support

Yaakov, my eleven year old who has Aspergers, was invited over to a friend’s house. He has known this child for a couple of years, but today was their first play date. I was so excited for him to have yet another experience of friendship and be able to experience being at a friend’s house.

As I dropped him off for a two hour play date, I did let the boy’s father know that Yaakov is on autism spectrum. He may not talk to you, but he isn’t being disrespectful give him time and he will break through his wall.

An hour later, I received a call from the boy’s father. “I don’t think your son is doing okay.” My first thought is he lost it and his anger is out of control. But, no it wasn’t that, he had gotten sick and thrown up. The father reported that they were playing a driving game on Xbox, and asked if he got motion sickness. I said yes, but never from a video game. I said it could be his anxiety that caused it too.

Read more HERE.

Sunday, May 12, 2013

Happy Mother’s Day to Moms with Kids with Special Needs

By Marie Hartwell-Walker, Ed.D. from PsychCentral

A recent TV ad says it all.

It follows a mom through her day with a little boy who appears to have some kind of developmental delay. The voice-over tells us he was in the neonatal intensive care unit for over 100 days. Now he looks somewhere between 3 and 4 years old. She makes him a peanut butter sandwich and laughs when he spills the milk. She plays with him and keeps a watchful eye while she goes about daily chores. She washes his hair as he kicks and squirms. She struggles to brush his teeth. Then there’s story time and a kiss good night. All the while, she is the epitome of patience and all smiles.

Then the ad gets real. Having tucked her little boy in, having said she wouldn’t trade him for any other kid, she has a moment alone on the front porch. In that moment we see “the look.”

Anyone who has been there knows what it means. To see it cross another’s face is to feel it in the gut. It’s the shadow that passes through in a moment of exhaustion. It’s the small piece inside that does wish, if only for a moment, that she did have another kid; one who didn’t need her every single minute of every single day.

Then she does what loving parents do: She takes a breath, remembers the blessings of being a mom to this special child, and goes in to get ready for another day and another round of constant care.

Moms, and dads with kids who are disabled or chronically ill know that look and the feelings that create it. They also know the moment that comes next: the moment of renewed commitment that is born of love and hope and determination. Raising a disabled or chronically ill child is not for sissies. If parents weren’t strong before this special child became theirs, they’ve developed strength they never knew they had in them.

Mother’s Day is almost here. Let’s all take a moment to appreciate the mothers who do everything every other mom does plus a whole lot more.

They are the moms for whom the first months of sleeplessness extend into years. They are the moms who become experts on their child’s diagnosis and therapies and education plans. They have learned to manage endless appointments with medical specialists and endless meetings with educational experts. They have learned an awesome vocabulary of medical terminology, education jargon and insurance codes.

Complicated schedules and routines and star charts have become second nature. Those who have kids with special diets know how to spot dangerous ingredients in a cupcake from a hundred yards away. Those with behaviorally challenging kids can handle a tantrum while folding laundry and planning dinner. Many even find the energy to organize support groups, get involved with agencies that offer activities for their kids, and advocate for other families as well as their own.

Contrary to conventional wisdom, most of their marriages are strong. Sure, the demands on these couples are many and constant. But most do better than just cope. They succeed as partners and as parents and develop positive feelings and values about raising a child who is challenged and challenging. The birth or adoption of a child with special needs has taken their lives in unexpected directions that aren’t always pleasant but are nonetheless meaningful and important. When asked, most will say that parenting their child has made them better people.

That strength and love and commitment extends to their nondisabled kids as well. If they thought about it, they could take enormous pride in their success in raising compassionate, competent kids whose experience with their brother or sister with a difference has made them sensitive to the needs of others. Most moms don’t think about it. They are just doing what feels right and good for their families.

For mothers of children with special needs, Mother’s Day rarely means a dinner out or diamonds. A qualified babysitter is hard to find. Money is more likely to go to bills than jewelry. Often the child who made her a mother can’t understand a holiday, can’t carry a tray to give her breakfast in bed and won’t be bringing her a bunch of violets or a card made all by himself. These moms celebrate their day with their different child in a different way.

And celebrate they do. They find joy in the knowledge that they are nurturing a child’s spirit as well as her health. They take satisfaction in knowing that each accomplishment, however small it may look to others, is a major victory. Each of her child’s achievements is at least partly her own. She knows the value of her efforts and the importance of keeping a positive attitude and counting the blessings of every day.

Still, it never hurts to hear all this acknowledged. Loving words of appreciation from a partner, spouse, friend or extended family members do mean a lot. If you know such a mom, reach out this Mother’s Day and let her know that you see her for the amazing person she is. A phone call or visit or card may seem like a small thing but for a mom in the special needs trenches, it can really make her day. The support of others added to her own commitment is what makes it possible for her to take that breath and get ready for another day.



Article HERE.

Monday, March 18, 2013

Community Resources - Interview with We Care's Vi Ibarra



What does your organization do for children of special needs?  

We Care has been providing children with special needs skills for a better start in life for 50 years!  Our programs continue to evolve to meet the needs of the community.  Some of our services include an early intervention preschool for kids with developmental delays, We Chat language group for late talkers, supports for children with mental health issues and their families, and the program I oversee, the Autism Family Support Project (AFSP).

How can a person access your services (i.e. fees, application process, eligibility, ages, etc.)?  

We are a non-profit and the majority of our services are available free of charge to parents.  Eligibility ages vary among programs.  For the AFSP, any family with a young child with an autistic spectrum disorder may access our services by contacting me.   Information about other programs may be found at www.WeCareChildren.org.

How does your program support social interaction among all children, typically developing and with special needs? 

The AFSP offers a number of family events throughout the year.  These events are open to all members of the family and include typically developing siblings.  It is nice for our kids with autism to have the opportunity to interact with typically developing kids, and it is also a focus of the program to include typical siblings.  Typical siblings can sometimes feel left out, or like they get less attention that their brother or sister with special needs.  Every member of the family is important and special in their own right and we strive to be inclusive.

Can you tell us what events/activities are happening this year?   

This will be our seventh year of offering Summer Camp for kids with autism and their siblings.  We have two distinct camps: one for kids up to age 7, and one for kids age 7 to 12.  Both will be held in August and are funded by RCEB for those children who qualify.  Throughout the year we also have monthly Parent-to-Parent support meeting, Parent Education events and Family Nights Out.  If you have a young child with autism, contact me to be added to our roster and get invitations for each of our events.

Another exciting event is our Making Connections family resource fair for parents of children from birth to age 5.   For parents who have questions about their child's development, this is an event they don't want to miss!  Saturday, April 20 from 10 am to 2 pm at St. Paul's Episcopal Church on Trinity Ave in Walnut Creek.  We will have free vision, hearing and developmental screenings as well as lots of local resources for parents and a fun zone for the whole family.  Parents of school age kids can help by passing the word along to any parents of younger kids.  Folks can contact me for more details.

Any suggestions for other community supports for parents to check out? 

I always refer parents to Care Parent Network.  Their staff has a huge depth and breadth of knowledge, and they offer a variety of services and supports as a child grows.  

What have you found most rewarding working with We Care Services for Children?  

As a parent of two children, one of whom has autism, it is so fulfilling to be able to work with other parents.  It is an honor for me to be able to accompany another parent in their journey with autism.  I am the coordinator of the program, and my family is receiving support through the program.  My children have had a lot of fun at We Care events over the years.

What is your favorite activity? 

My favorite We Care activities are any that bring the entire family together.  We have Family Nights Out several times per year which is an opportunity for the entire family to go do something together with other families with similar challenges.  Some examples of events we have done are going to the movies together, Encore Gymnastics, watching an A's baseball game or having family picnics on a Saturday at We Care.  It's a great way for parents to network informally while also giving our kids with autism and their siblings some fun time with mom and dad.

Contact Info.
Vi Ibarra, Project Coordinator at We Care Services for Children (925) 671-0777, ext 214

Sunday, January 13, 2013

Study Questions Early Intervention Eligibility Criteria


Whether or not a child with developmental delays qualifies for early intervention varies dramatically from one state to the next, but often researchers say far more kids are eligible than can be served.
The finding comes from a new study analyzing early intervention services across the nation. Researchers from the University of Colorado School of Medicine examined each state’s eligibility requirements for the Individuals with Disabilities Education Act, or IDEA, Part C program, which serves infants and toddlers with disabilities. Then they used data from a long-term government study tracking nearly 11,000 children to identify how many kids were likely to qualify or receive services in each state.
Read more of Shaun Heasley's Disability Scoop article HERE.

Friday, January 11, 2013

P.O.I.S.E presents Anxiety in School: What Parents Should Know

Parents of Orinda Individuals with Special Education (P.O.I.S.E) presents
Anxiety in School: What Parents Should Know
with speaker Dr. Michael Tompkins

January 30, 2013 at 7 p.m.
Lafayette Library

More info HERE.

Sunday, November 18, 2012

AIN Holiday Party

Holiday Party
 December 1st
2:30-4:30 p.m.
More information HERE.

Friday, October 19, 2012

All In Need News

See All In Need News HERE.

Friday, September 21, 2012

AIN Halloween Party, October 6


Social Event: Halloween Party! Saturday, October 6th at 2:30-4:30, at Oak Park Christian Center, 2073 Oak Park Blvd. We will be in the back classrooms of the CMC, park in the back of the lot and walk towards the middle building. We are the room in middle. Your child can dress up or come in everyday street clothes. Our afternoon will be filled with fun games: "Find the worm in the Chocolate Pudding,"  "Pumpkin Roll," other fun games,  food, and we will watch Casper!  Early Registration available September 17th through September 23rd is $25 +$1 handling fee! 
More details on AIN website HERE.

Wednesday, September 12, 2012

Military Families Overseas Struggle to Get Services for Children With Disabilities

By Nirvi Shah from On Special Education


While families in the United States sometimes struggle to get the right diagnoses and services for their children with disabilities, a new report from the Government Accountability Office highlights the special challenges families in the military face.
Overseas, Department of Defense schools offer widely varying services, the GAO said. For example, DOD schools in Ramstein, Germany, can serve children with severe disabilities of any type, but schools in some other overseas locations don't have any special education programs at all.
Although the Department of Defense recently created an office of special needs to help these families, the office is still working on improving screening and overseas assignment of military families with special needs, the GAO said. The office has limited authority to force different branches of the military to act, and the Defense Department doesn't have benchmarks and performance goals for how programs created for these families should work. "Without overall performance information to proactively identify emerging problem areas, some of the branches have had to conduct investigations to address problems after they have arisen," the report says.
Read more HERE.