By Michelle Diament from disabilityscoop.com
Caregivers of kids with autism report more trouble accessing services and a greater impact on their families than do parents of children with other developmental disabilities.
Despite having some similar needs, a new study indicates that the experiences of families living with autism differ significantly from those with intellectual disability, cerebral palsy, Down syndrome and other developmental disabilities as well as those with mental health conditions.
For the study, researchers looked at survey data collected through the federal government’s 2009–2010 National Survey of Children with Special Health Care Needs. They focused on responses from more than 18,000 caregivers of children ages 3 to 17 with autism, other developmental disabilities or mental health conditions.
Read more HERE.
The CAC sponsors this blog for everyone in the Mount Diablo Unified School District community who has an interest in special education and students with special needs.
Showing posts with label special health care needs. Show all posts
Showing posts with label special health care needs. Show all posts
Wednesday, December 25, 2013
Sunday, November 10, 2013
Taking Charge: Tips for Youth with Special Health Care Needs
By Admin from The National Collaborative on Workforce and Disability for Youth (NCWD/Youth)
When parents have a child or young adult with a disability or special health care need, they take on additional roles beyond typical parents. Parents become caregivers, advocates, and decision makers in all the systems their child is involved in such as education, social service, and health. But what happens as our children become young adults? How can we prepare them to take on some of those roles to better advocate for themselves if they are able?
Within the school system a student on an individual education plan (IEP) is involved in required transition planning with their team. Health advocates at PACER Center’s Health Information Center encourage families to include skills related to health care advocacy and transitioning from the pediatric system to the adult health care system into their IEP, 504 or Individual Health Plan.
Within the health care system it is also important to help young adults understand their role as advocates so that they can best prepare for medical appointments and take ownership of their health for better health outcomes.
Read more HERE.
When parents have a child or young adult with a disability or special health care need, they take on additional roles beyond typical parents. Parents become caregivers, advocates, and decision makers in all the systems their child is involved in such as education, social service, and health. But what happens as our children become young adults? How can we prepare them to take on some of those roles to better advocate for themselves if they are able?
Within the school system a student on an individual education plan (IEP) is involved in required transition planning with their team. Health advocates at PACER Center’s Health Information Center encourage families to include skills related to health care advocacy and transitioning from the pediatric system to the adult health care system into their IEP, 504 or Individual Health Plan.
Within the health care system it is also important to help young adults understand their role as advocates so that they can best prepare for medical appointments and take ownership of their health for better health outcomes.
Read more HERE.
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