Showing posts with label intellectual disability. Show all posts
Showing posts with label intellectual disability. Show all posts

Tuesday, August 25, 2015

EDUCATION: Language changing to describe students with special needs

By Stephen Wall/Staff Writer from The Press Enterprise
Published: Aug. 21, 2015 Updated: Aug. 23, 2015



Districts hope "people first" philosophy will create more respect for and acceptance of students with special needs.

CHANGING ATTITUDES
Schools are adopting new terms to refer to students with disabilities. Here are some examples of proper and improper language:

Say: People with disabilities
Don't say: Handicapped or disabled

Say: Cognitive disability
Don't say: Mental retardation

Say: Bob has a mental health condition.
Don't say: Bob is mentally ill.

Say: Brain injury
Don't say: Brain damaged

Source: Kathie Snow,
www.disabilityisnatural.com

When Pam Bender began her education career 28 years ago, terms such as mentally retarded were common in school settings.

Some teachers weren’t sure how to deal with students who had severe disabilities, she said.

“There were times teachers didn’t want these kids in their classrooms,” Bender said. “They didn’t know what to do with them.”

Over the years, the term fell out of favor, as advocates pressured government agencies to remove phrasing they considered hurtful and offensive.

The effort reached the highest office in the land in 2010 when President Barack Obama signed a bill requiring the federal government to replace the term with “intellectual disability” in many areas of government.

In local education circles, the movement to alter perceptions is growing.

Inland school districts have adopted policies and practices urging the use of so-called “People First Language” to describe students with special needs.

For example, instead of referring to a student as an “epileptic child,” they are encouraged to say “child with epilepsy.”

The Moreno Valley Unified School District board of trustees passed a resolution in June calling for people-first terminology.

Putting the student first and the disability second can have a profound effect on how kids view themselves and are seen by others, said Pam Bender, the district’s director of special education services.

“When you start to change language, you start to change attitudes,” she said. “We’re trying to get away from the negative connotations of terms.”

Nicole Bowles is a parent of two children with challenges. Michael, 14, and Jacob, 13, have autism and are enrolled in special education programs. Jacob, who attends Mountain View Middle School, also has been diagnosed with Attention Deficit Hyperactivity Disorder, his mom said.

At 5 feet 7 inches, Jacob is taller than other kids his age and she said he struggles to fit in. She said he’s been bullied by classmates, including one instance last year when a classmate closed a locker door on her son’s head after an incident in a flag football game.

Michael, a freshman at Canyon Springs High School, hasn’t had the same kind of negative experiences as his brother. But she said he has hard time making friends because of his disability.

She hopes that changing the language will lead to more acceptance of her sons and others with special needs.

Article HERE.

Wednesday, December 25, 2013

Study Finds Autism More Challenging For Caregivers

By Michelle Diament from disabilityscoop.com

Caregivers of kids with autism report more trouble accessing services and a greater impact on their families than do parents of children with other developmental disabilities.

Despite having some similar needs, a new study indicates that the experiences of families living with autism differ significantly from those with intellectual disability, cerebral palsy, Down syndrome and other developmental disabilities as well as those with mental health conditions.

For the study, researchers looked at survey data collected through the federal government’s 2009–2010 National Survey of Children with Special Health Care Needs. They focused on responses from more than 18,000 caregivers of children ages 3 to 17 with autism, other developmental disabilities or mental health conditions.

Read more HERE.

Tuesday, October 29, 2013

Shaken Baby Syndrome (SBS) / Abusive Head Trauma (AHT)

From The Arc

Shaken baby syndrome (SBS) or Abusive Head Trauma (AHT) is caused by vigorous shaking of an infant or young child by the arms, legs, chest or shoulders. Forceful shaking can result in brain damage leading to intellectual disability, speech and learning disabilities, paralysis, seizures, hearing loss and even death. It may cause bleeding around the brain and eyes, resulting in blindness. A baby’s head and neck are especially vulnerable to injury because the head is so large and the neck muscles are still weak. In addition, the baby’s brain and blood vessels are very fragile and easily damaged by whiplash motions, such as shaking, jerking and jolting. Shaken baby syndrome has been identified by other names such as abusive head trauma, shaken brain trauma, pediatric traumatic brain injury, whiplash shaken infant syndrome and shaken impact syndrome.

Shaken Baby Syndrome is the most common cause of mortality and accounts for the most long-term disability in infants and young children due to physical abuse. The true incidence of SBS is not known, but estimates range from an annual figure as low as 600 cases per year in the United States to as high as 1400. One shaken baby in four dies as a result of this abuse. Head trauma is the most frequent cause of permanent damage or death among abused infants and children, and shaking accounts for a significant number of those cases. Some studies estimate that 15 percent of children’s deaths are due to battering or shaking and an additional 15 percent are possible cases of shaking. The victims of shaken baby syndrome range in age from a few days to five years but most often involve children younger than 2 years of age.

Read more HERE.

Sunday, August 4, 2013

What is Rubinstein-Taybi syndrome?

From Genetics Home Reference (GHR)

Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe intellectual disability, distinctive facial features, and broad thumbs and first toes. Additional features of the disorder can include eye abnormalities, heart and kidney defects, dental problems, and obesity. These signs and symptoms vary among affected individuals. People with this condition have an increased risk of developing noncancerous and cancerous tumors, including certain kinds of brain tumors. Cancer of blood-forming tissue (leukemia) also occurs more frequently in people with Rubinstein-Taybi syndrome.

Rarely, Rubinstein-Taybi syndrome can involve serious complications such as a failure to gain weight and grow at the expected rate (failure to thrive) and life-threatening infections. Infants born with this severe form of the disorder usually survive only into early childhood.

Read more HERE.

Saturday, April 21, 2012

Genes Associated With Autism Also Related to Schizophrenia

Scientists have identified 33 genes associated with autism and related disorders, and they say several of the genes also appear to be altered in people with schizophrenia. Of the 33 genes, 22 were identified as associated with autism for the first time, according to the study, which currently appears online and is scheduled for publication in the April 27 print issue of the journal Cell. "By sequencing the genomes of a group of children with neurodevelopmental abnormalities, including autism, who were also known to have abnormal chromosomes, we identified the precise points where the DNA strands are disrupted and segments exchanged within or between chromosomes," senior study author James Gusella, director of the Massachusetts General Hospital Center for Human Genetic Research, said in a hospital news release. "As a result, we were able to discover a series of genes that have a strong individual impact on these disorders." "We also found that many of these genes play a role in diverse clinical situations -- from severe intellectual disability to adult-onset schizophrenia -- leading to the conclusion that these genes are very sensitive to even subtle perturbations," Gusella added. The researchers screened the genomes of 38 people with autism or other neurodevelopmental disorders. A significant number of the genes linked with autism also appear to be associated with schizophrenia and other psychiatric disorders. Read more of the Health Day article HERE.

Saturday, April 14, 2012

California Senate bill seeks to erase 'R word'

By Torey Van Oot, Bee Capitol Bureau - The Sacramento Bee

The use of the "R word" could soon be expelled from California laws.

The California Senate unanimously approved a bill Thursday that would strip the phrase "mentally retarded" from existing statutes, replacing that and related terms with "intellectual disability."

"Words do matter and the 'R word' is outdated and offensive to people with intellectual disabilities and their families," said the bill author, Sen. Fran Pavley, D-Agoura Hills.

Read more HERE.

Do IQ Tests Wrongly Label Some with Autism as Intellectually Disabled?

By Nirvi Shah from On Special Education

Denver

If a child has autism and doesn't respond to verbal cues, how can an IQ test in which they are asked questions be a real measure of their intelligence?

At the Council for Exceptional Children's annual convention, a pair of researchers from universities in Florida today shared those and other concerns about using some types of IQ tests with children with autism, tests that may wrongly find these children have intellectual disabilities.

"Are we saying there aren't a lot of kids that have autism that don't have [intellectual disabilities]?" said Douglas Carothers, of Florida Gulf Coast University. "We're saying there's no good way to tell."

Read more HERE.

Tuesday, April 10, 2012

For Many, Disabilities Still Conjure Stereotypes

By Shaun Heasley from disability scoop

Even among caregivers of those with disabilities, new research suggests that the sight of someone with facial characteristics typical of Down syndrome triggers negative thoughts.

In a study published this month in the journal PLoS ONE, researchers showed a group of 165 adults standardized images of children with Down syndrome and typically developing kids, all exhibiting neutral expressions.

As the photographs flashed before them on a screen, participants were asked to use keys to respond as quickly as possible to assess both positive and negative character traits, judging for example whether or not a child appeared “affectionate” or “stupid.”

While the adults in the study expressed more positive than negative thoughts about kids with and without Down syndrome, negative opinions became more frequent as a child’s facial features tended more toward those characteristic of Down syndrome.

This trend held true even among the 55 study participants working as professional caregivers for people with intellectual disabilities, though these individuals held the most positive thoughts of all the study participants about kids with Down syndrome.

Researchers from Aix-Marseille University in Marseille, France who were behind the study say that the findings are significant because their test measured implicit thoughts, or feelings that people may not freely divulge.

“Research into the social perception of intellectually disabled persons has been largely one-sided, focusing predominantly on thoughts and feelings, which may be distorted by social desirability concerns. In the current research, we found evidence of subtle forms of prejudice toward children with special needs at both the explicit and implicit levels,” they wrote.

The fact that professional caregivers were more likely to express positive impressions, however, suggests that relationships with individuals who have intellectual disabilities do make an impact, the study authors said.

Article HERE.

Thursday, March 15, 2012

Fran Pavley, California State Senator, Introduces Bill To Strip The Word 'Retarded' From State Laws

By Melissa Jeltsen from The Huffington Post

A state legislator introduced a bill to remove the word "retarded" from California's law books on Wednesday, calling the word outdated and demeaning.

State Senator Fran Pavley's legislation would replace all references of mental retardation with the more accepted term "intellectual disability."

Many advocacy groups have already condemned the word. The National Down Syndrome Society states: "People with disabilities, like all people, deserve to be treated as valued citizens and not referred to in a hurtful manner for any purpose. Using the 'R word' is hurtful and suggests that people with disabilities are not competent."

Read more HERE.

Thursday, February 16, 2012

Future Of Postsecondary Programs Uncertain

By Shaun Heasley from disabilityscoop

College opportunities for those with intellectual disabilities have proliferated in recent years, but with federal support in limbo, the viability of such programs could be in jeopardy.

A five-year federal plan designed to study the best approaches for getting students with intellectual disabilities through college was key in getting many programs off the ground. But the grant of roughly $11 million annually, which began in 2010, could be coming to an early end.

Read complete article HERE.

Wednesday, July 27, 2011

Education Week Free Webinar, Aug 10, 2011

Hosted by edweek.org

Narrowing the Achievement Gap by Expanding Time in School: What Educators Need to Consider
This event is scheduled for Wednesday, August 10, 2011, 1:30 p.m. to 2:30 p.m. Eastern time.

Expanding the school day or year is one strategy educators are employing to try to narrow the achievement gap. How schools use that time, experts say, should be tailored to meet the needs of individual schools. At the same time, though, there are proven policies and practices schools need to adopt to reach their goals. Finding that balance is tricky. Some schools have succeeded; others have failed. As more schools move toward expanded learning time using state or federal funding, what kinds of model designs should they choose, what tools are out there to help them, and what should their expectations be? Join us for a webinar that explores what educators should consider when implementing an expanded learning time model.


Presenters:

Jennifer Davis, executive director, National Center for Time and Learning

Emily McCann, president, Citizens Schools

Registration and more information HERE.

Audi's Best Buddy Challenge

TAKE THE CHALLENGE. CHANGE A LIFE.

You can make a difference! Support Best Buddies and help create one-to-one friendships between volunteers and people with intellectual disabilities.

Sign up today and join event Chair, Maria Shriver, for the eighth Audi Best Buddies Challenge: Hearst Castle on Saturday, September 10, 2011 from Carmel to San Simeon, CA.

More info HERE and HERE.

Wednesday, June 1, 2011

Teens with Intellectual Disability Have it Harder

Trudy is 16 and attends the local high school. Her mother tells me she’s always been an affectionate, optimistic girl with a quick smile and a big heart. But lately she’s been sad more often than happy. Lately, she has neglected her appearance, refused to do chores, and insisted on staying home from school and staying in bed. She doesn’t even want to watch her favorite videos. What could be wrong? Oh – one more thing: Trudy has Down Syndrome.

For more on this article click here.

Saturday, May 21, 2011

Most Common Form Of Inherited Intellectual Disability May Be Treatable

From redOrbit

Advancements over the last 10 years in understanding intellectual disability (ID, formerly mental retardation), have led to the once-unimaginable possibility that ID may be treatable, a review of more than 100 studies on the topic has concluded. It appears in ACS Chemical Neuroscience.

Aileen Healy and colleagues explain that people long have viewed intellectual disability as permanent and untreatable, with medical care focusing on relieving some of the symptoms rather than correcting the underlying causes. That includes Fragile X syndrome (FXS), the most common inherited form of intellectual disability. FXS occurs in an array of forms, ranging from mild learning disabilities to more severe intellectual and developmental disabilities. It is the most common known cause of autism or autistic-like behaviors.

Scientists are now beginning to get a handle on the changes that happen to cells and molecules in the body because of a mutation in the Fragile X Mental Retardation 1 gene. That gene contains instructions for making a key protein vital for nerve function in the brain, and does not work properly in FXS. With a better understanding of the biological effects of the mutation, the scientists say that treatments for FXS and similar disorders now seem possible. In addition, several drugs tested in humans seem promising. "In conclusion, the recent clinical introduction of multiple compounds representing a variety of mechanistic approaches to the disorder represents an exciting opportunity to realize the mission of implementing effective treatments of ID," say the researchers.

Article HERE.

Wednesday, May 11, 2011

President Obama's committee

Pres. Obama to appoint several individuals to the President’s Committee for People with Intellectual Disabilities. To read more click here.

Monday, September 27, 2010

House OKs "Rosa's Law"

The terms "mentally retarded" and "mental retardation" are to be replaced with “individual with an intellectual disability" and "intellectual disability."

Read Patricia E. Bauer's article HERE
View text of the law HERE
View ABC News presentation about Rosa Marcellino HERE